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A family requests genetic testing for their teenage daughter to determine if she carries a gene associated with increased cancer risk later in life. The genetic counselor must consider ethical implications of testing minors. What factors are most important in this decision?
Question 9 options:
Whether early knowledge provides medical benefit, respects the teen's developing autonomy, and considers psychological impacts
Genetic testing should always be performed as early as possible to provide maximum time for interventions
Genetic testing for minors should be completely prohibited until they reach legal adulthood
Parents should make all genetic testing decisions for minors without considering the child's preferences
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Correct answer: Whether early knowledge provides medical benefit, respects the teen's developing autonomy, and considers psychological impacts.
Rationale: Ethical guidance supports testing minors only when there is a clear, immediate medical benefit in childhood; otherwise defer until the child can meaningfully decide. Decisions should weigh beneficence/nonmaleficence, respect for the adolescent's developing autonomy and assent, psychological and social harms, family implications, and access to counseling and follow‑up.
Rationale: Ethical guidance supports testing minors only when there is a clear, immediate medical benefit in childhood; otherwise defer until the child can meaningfully decide. Decisions should weigh beneficence/nonmaleficence, respect for the adolescent's developing autonomy and assent, psychological and social harms, family implications, and access to counseling and follow‑up.
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