SUMMARISE:
Overview of literature:
The literature on heritable human genome editing is far reaching, with various opinions on its ethical and legal implications. The primary resources that are going to be used for this research include, books, articles, and reports relevant to this technology. The research problem is the need for global governance of heritable human genome editing. The Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing which was established by the World Health Organisation (WHO) in 2019, published a Draft Governance Framework on Human Genome Editing. However, this draft still has issues that need to be addressed, which include lack of focus on efficacy and safety, global standard versus state sovereignty issues, human dignity variations and potential harm to the interests of future persons. The question that need to be addressed now is how can heritable human genome editing be governed and regulated responsibly and ethically while ascertaining the protection of individual and societal interests. The unresolved conflict arises from the differing perspectives on the moral and legal acceptability off heritable human genome editing. Some argue that this technology should be used to treat inheritable diseases, whereas others fear that it may cause harm to future generations. There are various public opinions and attitudes towards the use of this technology which makes it even more challenging to reach a consensus. The fact that heritable human genome editing has the potential to revolutionise medicine and help improve many people’ s lives, so it is important to deal with these underlying issues as soon as possible. Even though it may be advantageous at some point it has risks and ethical issues which makes it vitally important to be cautious when considering its use. This research aims to provide an inclusive viewpoint on the present legal and ethical considerations of heritable human genome editing also to come up with suggestions for the ethical and responsible utilisation of this technology. In addition, the public opinion and attitudes towards this technology and the factors that influence them will be investigated. In summary, the literature is vast and varied, putting emphasis on the need for a legal and ethical governance and regulation of this technology. This research aims to make contributions to the current discussions and debates on heritable human genome editing.
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